… 2,500 births. The disease, which usually manifests between the ages of 10 and 20, is often marked by the presence of noncancerous tumors, typically found along nerve … selumetinib, a joint effort by pharmaceutical giants AstraZeneca and Merck & Co., is awaiting final approval from the U.S. Food and Drug Administration. Other … researchers say that’s still years away from being perfected. Today, the news is better in the Sakofs’ household. Amit, now eight years old, shows the signs of a …